Welcome to LBDtools.com

A toolbox of information and ideas for responsive care partnering, skills that help family and professionals deal with Lewy body dementia (LBD), with or without Parkinson's, Alzheimer's or other dementias.

Robin Williams died with un-diagnosed Lewy body dementia. His early LBD symptoms were either disregarded or diagnosed as Parkinson's, not at all unusual. Dementia expert, Dr. James Galvin, calls LBD, "the most common dementia you've never heard of."

No dementia is easy to deal with and LBD is harder than most. Early behavioral and psychological symptoms of dementia (BPSD) are common, as is a sensitivity to the very drugs normally used to treat them. 

Responsive care partnering starts with learning about:

Dementia specialists recommend that non-drug options should always be tried first for BPSD. This is especially true with LBD. 

Integrative medicine, a combination of traditional medicine and alternative options, tends to increase quality of life while decreasing the need for drugs.

For more information, our books, A Caregivers Guide to Lewy Body Dementia and  Managing Cognitive Issues in Parkinson's and Lewy Body Dementia are available through our shop.

Learn more about LBD and other neurological disorders, symptoms, concerns, options and more in the LBDtools Learning Center below. Follow our Award Winning Blog, the Lewy BodyRollercoaster for additional information and comments from people just like you.

The LBDtools Learning Center

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The Caregivers Guide to Lewy Body Dementia by award winning authors Helen and James Whitworth is the first book to present a thorough picture of Lewy body dementia in everyday language.

Managing Cognitive Issues in Parkinson's & Lewy Body Dementia discusses the connections shared with Lewy body dementia and Parkinson's, mild cognitive impairment, Alzheimer's and other neurological disorders. In addition, the book explains the sensitivity problems often found with many drugs commonly used with dementia while offering a multitude of non-drug options for enhanced care.

This trio pack is rounded out with Riding a Rollercoaster With Lewy Body Dementia, the Whitworth's manual for caregivers of LBD patients.

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